Keep hope alive.

We’re in the strange twilight zone between Xmas and new year where you don’t know what day it is and there’s a feeling of impatience, of waiting. Waiting for what exactly, you don’t know. It’s a time where I notice I go inward, even more so than usual, I start thinking about what I’ve acheived, what I haven’t acheived and how I’d like my life to look. The reality never matches my imaginings (think sunshine and cornfields with floaty dresses and bare feet) but I still do it or things will get very bleak indeed.

I have recently had a downturn in my mental health, I have been very exhausted but mainly my cells have been full of sadness. Waking up every day and feeling like it’s an obstacle course is tiring and disheartening . I’m also aware I’m not accepting what has happened, I refuse to, because living like this is just not good enough for me. Then comes the guilts and the shames for still feeling this way, wondering why a smart person like myself just can’t get over this. There’s the rub you see, it doesn’t matter how smart you are, it takes the time it takes.

As a result of my decline I’m back at Counselling and have been referred back into Brain Injury towers, that amusement park of services where you close your eyes and hope for the best. I’m grateful that they exist, I am, but it all just feels too little too late, too disjointed. A session I had at Counselling the other week brought up the notion of hope and how throughout all of this I always had hope, it was this that made me still have my imaginings of a healed braingirl and all the amazing stuff I was going to do, it was hope that made me carry on, it was hope that was sometimes the only thing that made me brush my teeth and go to the toilet.

But recently, my hope had disappeared. This was worrying, as in the absence of hope, I had nothing. That’s when I felt REALLY broken. That feeling of the final straw. I was starting to think I couldn’t do this anymore, to keep getting up after having your legs swiped from under you has its limit it would seem. I am a stubborn mofo but I was starting to feel I had no strength left.

As you may or may not know, I came off all social media last year, because it was so full of hyperbole that it was sapping my will. I stayed on Instagram because I enjoy the pretty pictures, I also enjoy the fact that you don’t have to say anything if you don’t want to. I was lazily scrolling through my feed earlier and dipping into some comment sections and I noticed that a lack of hope was creeping in there too. There was one particular individual (not on my follow list) who was just plastering Vegan accounts with despair and nihilism. He was a younger fella so he may be doing that teenage emo thing but it got me thinking about the nature of hope and how intrinsic it has been in recovery. It also got me thinking about hope on a wider scale. It doesn’t take much to trigger my PTSD and I am very careful about what I feed my brain so it only took this one kid to send me into a despair spiral about climate change and why intelligent people (who think of themselves as fair minded) still keep oppressing animals, why don’t they get it, why nothings ever going to change, the sky is falling in etc etc etc. Then I stopped myself and realised that firstly I felt sorry for this person, to be so young and so free of hope must be very scary indeed but it also kick started my hope accelerator. How can he have given up I asked myself. There is always hope, there has to be. 

I don’t want to live in a world out of hope, heck, I don’t even want to live in my own body without hope. If you’re out of hope, plant something, make a list of things you’d like to do, let yourself lie in bed and have your wild imaginings about that day where you are healed and free. The plant may die, the guitar may go unplayed and you may never be fully healed but for that second, you got a boost in your hope centre and your neurons laid a stepping stone that helped lead you towards a moment of sunshine.

Now playing: ‘No hard feelings’ – The Avett Brothers

I found this poem called ‘Wild Geese’ and somewhow it fits. It’s lovely. Please read it.

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4 thoughts on “Keep hope alive.

  1. 💖

    To hope is to run free when your legs don’t move. I’m always running when I dream of somewhere else I’m going…one day…

    There’s always stars in the sky even though the clouds may dull their shine. Stay shiny. Xxxx

  2. Thank you once again for your perspective on how this really can feel at times (most of the time actually). I seem to crash at this time of year and I need a reminder that there is always HOPE! There has to be…..Thank you again. I wish I could write as well as you-you are amazing.

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